Chronicle Of Blog Visitor Narrative...

 OMG!!!

STAND ALONE NARRATIVE

EPILEPTIC FIT BEYOND BELIEF




Hi Stella,
My e-mail concerns the young woman who suffered from epilepsy and recently committed suicide. I had written to you the day her story was published, hoping to reach out to her, but it turned out that it was already late. 

Today, I have found the courage to share a similar, albeit worse experience, and I hope you will post this because I still believe there may be a solution to this problem.

I am a 35 years male and my twin sister has been epileptic since four or so. I don't have details how it started and it is hard to ask my parents because the mere mention of it breaks our heart. I have heard my dad mention a couple of times that one of his relative in the village is responsible for my sister's ordeal. 

My parents actually took us to the village to visit our grandmother when we were kids, and it seems things started to go bad for my sister and one of my brothers thereafter.

I read a bit about epilepsy; there are two basic categories of this disease. The first is called "petit mal", this translates to "lesser evil", from French. It an epileptic condition where the patients have a moderately low amount of short seizures, lasting for less than a minute, usually. 

When the seizures are recurrent (sometimes, up to 6 times a day, as in the case of my sister and lasting for about 5 minutes), it's called "grand mal". I have noticed that her seizures are periodic, and usually start at full moon. It seems that the lunar cycle has some kind of influence of the brain's activity, according to the few research papers I have read.

Whenever my sister has a seizure, usually at night, she lets out a horrifying shriek that would chase sleep off your eyes for the whole night, but we are used to this already. Her body quakes vigorously.

 The spasms are so violent to the extent that you have to hold her limbs to avoid them from injury. She foams from the mouth, breathes heavily and passes out after an excruciating 4-5 minutes. It is the most heartbreaking sight one could ever behold. No human deserves to go through this! Taking care of her is a torture, because no matter how you clean her room up, it still oozes of poop and urine.

We as a family are still struggling to grow, and we have done all we can to better her condition, but to no avail. I have been administering her drugs for years, but I have now given up because nothing has changed. I can confidently say that epilepsy is one of the worst diseases ever. We have seen her health rapidly degrade over the years, to the extent that she cannot even talk or walk.

 The burden of caring for her has been on my aging mother and it is harrowing for her. Imagine a 70+ year old woman who spent her life struggling to raise 10 children still caring for an adult the way you would for a baby, but with no hopes for a better future whatsoever. To be honest, sometimes I wish my sister would just die, and leave us alone. She is not living any kind of life here, to my understanding, and she's not useful to herself or anybody. 

It seems harsh to say this, but I bet many in the same condition would think or do worse. Anytime I speak with my siblings about her condition, our conversation gets punctuated with heavy sighs of defeat and dies off.

My sister was very bright as a kid, but now, she is just a shadow of herself now with no basic mental faculties whatsoever. Sometimes, I imagine that her brain cells have been totally fried up due to excess electrical activity and are now way beyond redemption. I read the comments of that sad post and people mentioned that this thing could be cured. 

Where can I get help even at this stage of her life, after living with a debilitating disease for 3 decades?

*I finished reading this Narrative with tars running down my face and I a really sad.....I feel like asking if it is not too late to seek any kind of help with this situation you just described but hey is there something that God cannot do?

If there is help, you will find it in Jesus name!!