....This story will break you.
They came from California,Florida, Indiana and points in-between. A YouTube star made a surprise appearance, members of a favorite boy band poured their hearts out in a video message and flowers arrived from around the world.
All for a 14-year-old girl from Appleton, Wis., they had never met.
Jerika Bolen has spinal muscular atrophy type 2. The disease destroys nerve cells in the brain stem and spinal cord that control voluntary muscle activity, and a lack of movement causes the muscles to waste away. Jerika has never walked, and she said her pain is a seven on a scale of one to 10 on her best days. She can speak and has some movement of her hands, but the disease — and the pain — are only going to get worse.
Earlier this summer, with the support of her ever-dedicated mother, Jen, she decided that, while she can still make her desires known, she will move to hospice, unhook her ventilator and die.
But first, she wanted her last wish — a prom. Dubbed "J's Last Dance," she took to the dance floor Friday night as a steady stream of well-wishers flooded into the Grand Meridian ballroom in Appleton to say goodbye to a girl whose attitude in the face of heartbreaking misery has been inspirational.
As she soaked in Friday's hoopla, her hair dyed a shiny blue and wearing sparkling lipstick to complement her gorgeous greenish blue gown, Jerika said she was thankful but a bit perplexed as to why people have been so deeply moved by her story, which was first reported by The Post-Crescent.
“It’s awesome,” she said of Friday's party. “It’s fun. It’s a lot of people, and they look up The hall was decorated in lime green and black, Jerika's favorite colors. The crowd overflowed the hall, which holds 1,000 people. A well-stocked candy buffet set up for guests was cleaned out in the first 90 minutes.
Friday was set aside for happiness, and the work to accomplish that goal had begun long before the disco ball started spinning above the DJ station.
The living room in the Bolen house, which Jerika shares with her mother, Jen Bolen, became a makeshift beauty salon on Friday afternoon as Jerika, her mom and several friends had their hair and makeup done.
Jerika wore a tiara and later added a prom queen sash to the ensemble.
The evening was momentous from the second Jerika emerged from the house.
Police and firefighters gathered at the curb and applauded as she maneuvered her power wheelchair to the red carpet and a 28-seat Ford Excursion limousine.
Jerika, friends and family were given an escort fit for presidents with a motorcade of 17 squad cars and a fire truck, all with lights flashing and sirens sounding.
Appleton Police Chief Todd Thomas stepped into the house to offer his best wishes before Jerika set off.
“We’re just blessed to be able to help out,” Thomas said. “It’s an honor for us, and what an amazing young lady. She makes you appreciate what you have. She makes you think about using your time wisely. She’s making an impact.”
Multiple television crews greeted Jerika at the banquet hall. Floral bouquets set up on a table inside the Grand Meridian lobby had been ordered from New York, Washington, Georgia and Kuwait, among other distant locales. U.S. Rep. Reid Ribble sent flowers.
John Current, along with his wife and daughter, drove from Napa, California — a drive of more than 31 hours and 2,000 miles — to celebrate the life of a girl they hadn’t met before Friday night. They brought a stuffed animal as a gift for Jerika, a thank you, they said, for the way she touched their hearts with her bravery and attitude.
“It’s inspiring, it’s sad and emotional,” Current said. “It’s the whole thing. She just captivated me.”
The long drive was worth it to see her smile, and “out there on the dance floor looking like she’s living life,” he said.
Pain medications have taken their toll on Jerika, and the prognosis is that her body will soon lose the little function it has. She told her mother that it is time to die. But first, they agreed, there would be one more summer. And Jerika, a tech-savvy teen with a punk attitude and a love of alternative music, had a final wish — a special prom, a dance party for friends and family to dress in their "fancy" clothes and celebrate one more time.
The family established a GoFundMe page to raise $25,000 to pay for the prom and to offset expenses in Jerika's final days. The fund had stalled at $7,000 until a story, video and photos about Jerika from USA TODAY NETWORK-Wisconsin drew attention around the world a little more than a week ago. The fund has now surpassed $33,000.
When Jerika is placed on hospice in late August, she’ll go without the ventilator that assists her breathing for 12 hours a day. She said she’s at peace with her decision, but worries about leaving her mom behind to grieve.
So Jerika’s first dance on Friday went to her mother.
Martina McBride’s “In My Daughter’s Eyes” poured from the loud speakers as Jen took her daughter’s hand.
Jen leaned in close and said, “I hope this is the best night of your life.”
How could it not be?
It followed a day full of surprises.
On Friday morning, two large flower bouquets arrived at their home as a gift from the California boy band New District. The band also recorded a video message to Jerika that was played on a big screen during the prom, and moments after, they engaged Jerika in a brief video chat.
Richie Giese, one of Jerika’s favorite YouTube celebrities, dropped in as the biggest surprise of the night. The electro pop performer, who goes by the name Social Repose, flew in from Washington, D.C., and arrived at the hall in full costume, which includes a feather headdress and white face paint. They shared a dance together and later stepped out into the quiet to talk privately.
Giese said he, too, was inspired by Jerika’s story. When learning she was a fan who had hoped to one day video chat with him, he knew he could do better.
“I thought, ‘Let’s just go all the way. I might as well make her day,’” Giese said. “Let’s just push this over the edge.”
Other visitors to Friday's prom said they simply felt a need to be there to support Jerika.
Margaret Norby, a junior at Appleton's Lawrence University, arrived with her boyfriend, Jackson Straughan, an LU senior. Norby had earlier reached out to the Bolens asking how she might help and had agreed to purchase corsages for the occasion — though the florist later told her they were on the house.
Norby said she was moved by Jerika’s attitude in spite of her heartbreaking condition.
“I don’t know how to describe it,” she said. “She has a situation and an outlook that not everybody has. She has wisdom, and she’s not apologetic about who she is.”
For Jerika, the prom was at times overwhelming.
culled -usa today.
*OH Lord...Goodbye Jerika.
The tears dropped at d point where she had her first dance with her mom."in my daughter's eyes". How'd the mum feel to know that she's gonna be left all alone? Strong women. Lord thank you for health and life. Grant jerika eternal rest and give her mum the strength to carry on.
ReplyDeleteI cried reading this. Wow!
DeleteI cried... LORD pls give me the grace to be thankful Always
DeleteI cried..... God forgive me for not appreciating all i have
DeleteLord bless and console her mum
DeleteGod bless all those who showed up for her, God bless Jerika's poor heart. May God accept her soul.
ReplyDeleteNo one deserves to live in continous pain. 14 years she has lived hers, may she find eternal peace. Such a brave girl.
Death in this situation is actual relief.
DeleteAnd the fact that she kinda knows when she will die (on the flip side) is "soothing", she can actually "Prepare" and if she knows God, she can be hopeful to awake on the resurrection morning.
I tell you. The pain is too much. Better to let go. Dayum so sad.
DeleteI am totally speechless and overwhelmed. This is the definition of unconditional, true, pure and unadulterated LOVE. My her final days n moments be peaceful and painless.
ReplyDeleteI am totally speechless and overwhelmed. This is the definition of unconditional, true, pure and unadulterated LOVE. My her final days n moments be peaceful and painless.
ReplyDeleteAlthough a short life, but she has fulfilled what even a 70year old may not achieve in a lifetime. That is having her wish come true in her final days. I'm so sad.
DeleteI owe God a whole lot o. May she fund peace with God Amen
DeleteIhe nke a ha jujukwaranu ya n'onu ajoka
Find*
DeleteGoodbye Jerika, go be with your Creator
ReplyDeleteCan't you read? She is not Dead yet! U just follow stella say Goodbye.
DeleteGoodbye is in order anonymous. You should be the one to read again. She's shutting out soon dear.
DeleteVery Inspiring story! Good to know that a lot of people reached out to her in her last days and that her wishes were granted! A very brave girl indeed! Her story should serve as a lesson to us all. We should be grateful to the Supreme being for what we are and have, especially for the air we breathe!
ReplyDeleteThis just made my problems pale in comparison. I'm actually embarrassed about the sorts of requests I've making and asking God for.
ReplyDeleteThese kind of stories have a way of jolting you back to reality and making you thankful for the things you have. Poor girl. I hope her mum will find the strength to move on after her daughters' passing.
Dr S.
Well said Dr S.
DeleteEveryday we wake up with so many demands, misplaced priorities, we fail to realise that so many people out there have it worse; we as a nation can't seem to put aside hate and brutality and live peacefully, but this beautiful soul just wants to live a normal life devoid of pain and hate.
Stories like this makes me feel ashamed of myself, all the while I'm complaining about mere problems and situations, someone out there just want to breathe freely, to walk without help, to move, to laugh, to have friends, to go out, to sit, to stand, to do all those things we take for granted...
Let's try to love ourselves, preach love, make this love contagious, live like we are living on a life time clock and we know every second counts...
Bless your soul sweet, brave and courageous 'Jerika Bolen', may your last days be filled with peace and love, may your dying days be as short and painless as possible.
#SoberReflection
#Mood
So touching....
ReplyDeleteI cried reading this. I wish God can just step into her situation and heal her of all her sickness.
ReplyDeleteWow. My eyes were just dripping.
ReplyDeleteSuch a brave girl. Imagine the pain. Assistance to breath for 12 hours a day. I appreciate what I have. If u think your condition is bad and u hear the issues other people have,u will be thankful.
Goose bumps all over me, what a world..
ReplyDeleteOur politicians should read this,so they can realise that all the wealth they are gathering is just vanity. The good works is what speaks volume after death. Rest on dear,may the Lord receive your soul.
ReplyDeleteThis brought tears to my eyes. God I apologize for opportunities taken for granted. Rest well good spirited girl, go in peace and may God console your mother at the time.
ReplyDeleteWow! Just wow!
ReplyDeleteWhat a way to go girl. So nice yet sad but she got her wish
I wish a miracle can happen ,so she can be healed and live longer
ReplyDeleteTouching. Stories like this makes me appreciate life even more.
ReplyDeleteIm telling you.
DeleteOh God! And am complaining abt little things. Pls forgive me Lord and thank u for all u av given me. Farewell Jerika! God loves u
ReplyDeleteWhat a sad story.
ReplyDeleteI pray she makes it to a place where they she ll have a better make up artist.
Safe journey baby.
May God forgive you for your dumb statement.
DeleteSMH. May God not humble you for this insensitive comment
Delete“The crowd overflowed the hall, which holds 1,000 people. A well-stocked candy buffet set up for guests was cleaned out in the first 90 minutes."
ReplyDeleteAssholes. They were there for the buffet.
No they weren't!!
DeleteThey were there to show her love, if you even know what love means...get rid of every negativity in you!!!!!!
Excuse me! People abroad aren't like people here. They have more compassion so I assure you they were not there for the bloody buffet. That statement was made to show that so many people came there. Maybe more than expected and that was y the food finished quickly.
DeleteWell, prior the appearance of food, they might have been there for the girl but there's just this thing food (especially free) does to human.
DeleteMy mood just changed. Oh Lord! The things we take for granted in this life ehn... Father forgive me for not being grateful enough. God bless your soul pretty girl. What a beautiful way to end a sad story. In glad she had her wish.
ReplyDeleteCome to think of it, can this ever happen in naija?
O Jesus!i just cried now
ReplyDeleteI thank you lord for the gift of life
Sigh.
ReplyDeleteRest well Brave one. God bless you.
This brought tears to my eyes. I wish she doesn't have to die. Can't someone do something? Really?
ReplyDeletewww.adaezewrites.com
That's very sad but she isn't dead yet. God can still heal is not too late
ReplyDeleteDoctors said that she will die by the end of summer but God hasn't given His final say. God can do a miracle which no man will expect
ReplyDeleteThis brought tears to my eyes..reminds me of the book Me before you by Jojo Moyes.This is a wake up call to be grateful for every single thing we have no matter how minute it is,it could be worse.
ReplyDeleteI have never Stopped believing in Miracles,God of dead end,its only You that gives hopelessness hope,Give hope Lord and quicken her mortal body, Do it Lord please and Show the world how great and mighty you are Lord.
ReplyDeleteSo touching, good bye jerika. #lordgivemecontentment...
ReplyDeleteWaoh! had teary eyes.
ReplyDeletewatched the movie " Me before you" recently and it had almost same romantic teary story line.
Be thankful each day for what you have and yet to have.
Anyone that can reach her should tell her mum to watch ofm live streaming on Sunday I belive she will receive her healing thru Apostle Suleiman
ReplyDelete